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Linda McInnes
Linda McInnes
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Linda McInnes
Linda McInnes
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Fri

03

Sep

2010

Hepatitis C care quality condemned by MPs

Wide variations in hepatitis C treatment are contributing to a 60% rise in the number of people dying from liver disease over the past decade, MPs have warned.

Although hepatitis C’s exact contribution to rising mortality is difficult to calculate, the report from the All-Party Parliamentary Hepatology Group said it was certainly “underestimated” because so few people are diagnosed and condemned the wide variation in the quality of patient services in NHS hospitals.

 

 

Fri

03

Sep

2010

Hep C in Prisons - Information Wanted

'I'm looking for interviewees with personal experience with hepatitis C in Australia's prisons for a radio news story on the subject. You could be someone who has been or worked in prison, a relative of someone in prison, a social worker, or even someone with anecdotes on the issue. I hope to record an interview either over the phone or face-to-face. My aim is to shed light on the issue and provide a voice to those who I feel are underrepresented or ignored in health care debates. The story is for a university assignment but has a possibility of being broadcast.

If you feel you're able to help me, please contact me either at my email address, This e-mail address is being protected from spambots. You need JavaScript enabled to view it ,

or on my mobile:  0402812187


Nick Nedeljkovic

Journalism student at UTS in Sydney

 

Wed

01

Sep

2010

The CHI (Charting Health Impacts) Study

The CHI (Charting Health Impacts) Study is about how hepatitis C affects peoples' lives. CHI follows a group of people over time - looking at all the health and social aspects of life - so community organisations, doctors and governments can learn what it is like to live with hepatitis C.

Joining the study involves taking an anonymous survey online. We then contact you in three to six months so you can tell us how things have changed for you.

If you have ever been told that you have hepatitis C, let your experience count and let CHI know about how hepatitis C has affected you.

For more information or to participate in the study visit the CHI Study website at

http://www.chistudy.org.au

Welcome to The CHI Study

The CHI (Charting Health Impacts) Study is about the impact of hepatitis C on peoples’ lives. The study follows a group of people over time – looking at all the health and social aspects of life – so they can tell community organisations, doctors and governments what it is really like to live with hepatitis C.

Joining the study involves taking an anonymous online survey, which you can take your time completing. We then contact you in three to six months so you can tell us how things have changed for you.

If you have ever been told that you have hepatitis C (even if you have had treatment since then) and you are interested in participating in the study, or if you just want to find out more about the project and hepatitis C, you can access the Chi Study here.

Please be sure to let your experience count and let us know about how hepatitis C has affected you.
http://www.chistudy.org.au/



Thanks to Cecilia Lim from the Hepatitis C Council of South Australia for this information.

http://www.hepccouncilsa.asn.au/compone ... -chi-study

 

Mon

30

Aug

2010

Hep Connect – Peer Support Program

VOLUNTEERS NEEDED!

Hepatitis NSW is now recruiting volunteers for Hep Connect – a phone based peer support program.

Hep Connect aims to support people with the complexities of hepatitis C treatment.

We are currently looking for volunteers who:

· Have experiences of hepatitis C treatment (regardless of treatment length and outcome)
· Would like to support other people with hepatitis C
· Live in NSW
· Are able to attend volunteer training 15th & 16th October 2010 in Sydney (all travel and accommodation costs will be reimbursed)

If you know of anyone who would be interested in volunteering for Hep Connect or if you would like a recruitment poster to display at your service then please contact Niki or Toby on 1800 803 990 .

http://www.hep.org.au/index.php?article=content/home

 

Sun

29

Aug

2010

Survey reveals widespread ignorance about hepatitis
A new survey has found that most Queenslanders do not know that hepatitis B and C can cause cancer, or that medical treatment is available.
 
The survey released at the beginning of National Hepatitis Awareness Week 17-23 May reveals that 65 per cent of Queenslanders do not know that the hepatitis B and C viruses can cause cancer. It also finds that 53 per cent do not know that effective hepatitis B treatment is available, and 82 per cent are not aware that hepatitis C can be treated and cured.
 
The Hepatitis Council of Queensland estimates that up to 90 per cent of the 371,700 Australians currently living with chronic hepatitis B or C have never received treatment. In Queensland, there are almost 4,000 new diagnoses of hepatitis B or C each year.
 
Hepatitis B and C are transmitted by blood-to-blood contact, and hepatitis B is also sexually transmitted and can be transmitted at birth. However, more than half of people surveyed cannot correctly identify how the viruses are transmitted and do not know about symptoms.
 
Clint Ferndale, CEO of the Hepatitis Council of Queensland, says the statistics are alarming.
 
“Unmanaged or untreated, hepatitis B or C can lead to severe liver disease and liver cancer. Globally 1.5 million people die every year from these viruses and they are the top two indications for liver transplant in Australia,” he said.
 
“Australia is now on the brink of a viral hepatitis crisis. The mortality, morbidity, and health care costs are astronomical.
 
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