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World Hepatitis Alliance PDF Print E-mail
Monday, 19 May 2008 17:31

The World Hepatitis Alliance - http://www.aminumber12.org

World Hepatitis Day is being coordinated by the World Hepatitis Alliance, a newly established non-governmental organisation that represents approximately 200 hepatitis B and hepatitis C patient groups from around the world.

As a coalition of advocacy groups, the World Hepatitis Alliance is a global voice for the 500 million people worldwide living with chronic viral hepatitis B or C. It also aims to educate people about the risks of contracting hepatitis and encourage governments to implement public health campaigns to help reduce the incidence of the diseases at national levels.

The World Hepatitis Alliance is governed by a representative board of patient groups from seven world regions: Europe, Eastern Mediterranean, North Africa, North America, South America, Australasia and Western Pacific.

President:

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The Hepatitis C Trust (UK)

Europe region:

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European Liver Patient Association

(ELPA; Germany)

Eastern Med/ Africa region:

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SOS Hepatites

(Algeria)

North America region:

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NASTAD

(USA)

South America region:

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Grupo Otimismo

(Brazil)

Australasia region:

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Hepatitis Australia

(Australia)

Western Pacific region:

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Chinese Foundation for Hepatitis Prevention & Control

(China)

Public Health Panel

A Public Health Panel has been set up by the World Hepatitis Alliance to act as an advisory board and expert reference group. This year, the panel members will be supporting the global and country launches of World Hepatitis Day and providing messages of support for the campaign which can be found throughout this website.

Support Around the World

World Hepatitis Day has also been endorsed by some of the most important medical and healthcare groups in the world and looks forward to working with many more organisations in the future.

“The only way to win the fight against chronic viral hepatitis is to join forces.”

Prof Jean-Michel Pawlotsky
Member of the World Hepatitis Alliance Public Health Panel

‘12 Asks for 2012’

In addition to the ‘Am I Number 12?’ campaign, the World Hepatitis Alliance and patient groups around the world are asking national governments to sign up to ‘12 Asks for 2012’.

The ‘12 Asks’ relate to a series of commitments that recognise the impact of the diseases and the importance of adopting measures that address the issue from a public health perspective. The ‘12 Asks’ to governments are a central element of the campaign aimed at setting objectives both internationally and nationally for improvements in health outcomes for patients.

Hepatitis Atlas

The World Hepatitis Alliance is also launching a call to action with the development of the first ever Hepatitis Atlas. The Hepatitis Atlas will evolve over time, with this first edition showing the kind of data that is needed and to demonstrate the extent to which it is lacking in many countries.

One of the main concerns of the World Hepatitis Alliance, and something that the Atlas will demonstrate, is the lack of available data on chronic hepatitis B and C. As it stands, even the most recent data from the World Health Organisation (WHO) date back to 1999.

http://www.aminumber12.org

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